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My name is Marty, I work for BetterSex.com and I have cancer. Not an easy thing to write, but please don’t feel bad for me. I love my family, job and life and I am not alone.

There are more than 10,000,000 people in the United States living with cancer today and this is more people than currently live in Chicago, Houston and Philadelphia combined. Statistics from the National Cancer Institute place the chance of developing some sort of cancer at about 1 in 2 (men = 45% chance, women = 38% chance). Six degrees of separation says that either you have cancer or you know someone or several people who do. The ubiquity of Lance Armstrong’s “Live Strong” yellow bracelets demonstrate this fact better than words http://www.livestrong.com.

I don’t quote cancer statistics to scare, but cancer is an important topic for everyone who visits our web site. A friend asked me a great question. Why should people read your story if they don’t have cancer? “Hope,” was my one word answer. Working together we can create hope. Sharing makes us all stronger.

Hearing from you will help me and others feel less alone. Please share your story of hope, suggestions or just say hello by emailing Marty@bettersex.com . I will protect your information like a mother bear protects her cubs, and I will respond to every email.

My Story
Many things happen after your doctor says, “We need to have a difficult conversation.” One thing is you want to share anything and everything. The concept of “saving for a rainy day” gets turned on its head. The rainy day is now.

I am not being completely honest. My first reaction was to feel sorry for myself. That felt stupid (after a bit). I’ve had some pre-conditioning for the cancer experience because I found out I have multiple sclerosis (MS) when I was thirty. That makes me a two-time winner and so unique that my doctors estimate I may be one of 10 people in the world who has cancer and MS. If you are one of the other nine, please email me.

Recently Lance Armstrong spoke of how having cancer positively changed his life on Meet the Press. I am coming around to his way of thinking. Anyone who wins seven Tours has my attention, respect and admiration. Like Lance, I am lucky for many reasons. My boss knows about my challenges and wants to help. I see that people are capable of amazing kindness and support. I am also lucky because this is my test, my Tour. Like most things, this current test reminds of riding a bike. Every hill no matter how small or steep has a point where you are not sure if you will get to the top. The key to those moments is to press on. The best hills test everything about you. You always know yourself better gliding down the other side.

This isn’t an easy story to write. There is something about seeing black words on white paper (or screen) that makes having cancer more real (in a strange way). Forgive me if I ramble. Rambling allows me to sneak up on the hard topics we are tackling together. I understand the power of the outline, but today we are just talking. I’ve left enough structure to tell my story in the hope you will share yours.

What Sex Means When You Have Cancer
It is hard to explain how important intimacy is when you have cancer. Intimacy may be the most important “treatment”. Cancer works on your mind and body. The mind battle is the harder of the two (for me). Intimacy, sex, connection with another human is heightened. Sex may be more magical when you have cancer because you are past taking things (or people) for granted.

Yes, there are days when I am too tired to tie my shoes much less think about sex. Sex may not be the most important thing on a given day, but it is still very important. If you have cancer, don’t give up on sex. If you are the partner of someone with cancer, don’t give up on him or her and don’t give up on sex.

Cancer can be very isolating because it pulls the person with the disease inward. It freaks you out. The internal dialog in your head gets pretty loud. It is saying something like, “HELP!” It can be hard to have productive conversations or not lose your partner, friends and family when your inner voice is shouting so loudly. It takes dramatic strength or a great partner to break through and quiet that voice.

Greeting cards are signs of support, but they fall short. Movies, television, books are great distractions. I love them all, but they fall short too. My iPod helps and I’ll discuss what’s on my iPod later. Right now, listening to my iPod is as close as I get to the best medicine – intimacy with a loving partner.

Cancer can be isolating because your lover experiences you differently. You can see this in their eyes. You may have made love the day before your diagnosis. It doesn’t matter. After your doctor uses the “C” word you are forever changed, instantly a different person. I try to remember that cancer isn’t just happening to me. It is happening to family and friends too. Remembering that it isn’t all about you when you have cancer can be a challenge. Heck, I thought it was all about me before the cancer (only half kidding here).

Make Love Don’t Break Up
I am going to preach here a little. I know, I know, I’ve been preaching for 500 words already. This sermon comes directly from my heart. Life is short. There may only be a few times when you will live as fully and completely as when you face a tough challenge.

Stay together because you will know yourself and your partner in a unique way that is a gift, a reward, and a treasure. How many treasures do you get in life? If you can’t stay together make sure you have a good support network. No, your dog or cat doesn’t constitute a support network at least not completely.

Different Is Okay
How you see yourself and how you actually are is always off a little. Cancer or any illness tricks you into thinking you can do more than you can. You will over estimate your power, stamina and strength. It is going to happen. Forgive yourself now for later because it will make life easier. Quick funny story along these lines. A couple of weeks ago I attended a conference. The organizers, in their infinite wisdom, put our “free breakfast” in the middle of the vendor area. You couldn’t even sit down because they wanted you out there talking to the vendors who, in fairness, did pay big bucks to be there. One morning I grabbed some Raisin Bran and joined someone I didn’t know at a stand up table. He was standing on my right eating eggs. I tried for what seemed like minutes to open the vacuum-sealed cereal. I finally ripped open the package showering Raisin Bran all over the table and his eggs. I felt pretty stupid and those eggs must have tasted bad even though he was gracious. Some mornings opening cereal is going to be a challenge.

Lance Armstrong proved it is possible to get stronger even with a major health challenge. Lance wrote about getting dropped (passed on a bike) by a nice older lady on his first ride after chemo. You will get dropped too and that is okay. Even if you don’t care about riding bikes, you should read Lance’s book It’s Not About The Bike. This book is about the indomitable spirit we all share so I strongly recommend it.

Being Physical
When I was diagnosed with MS I had the privilege of attending a weeklong session at the Heuga Center in Vail Colorado http://www.heuga.org . Meeting Jimmy Heuga was an inspiration. Heuga, a Bronze Medalist in the 1964 Winter Olympics, has multiple sclerosis. Jimmy told the 30 MS patients visiting his center about life and desire. He explained the “different is okay” concept. He couldn’t ski the way he used to, but he still skied. If MS made it difficult to walk then he would move his eyes from the left to right as fast as he could in bed. Jimmy would do whatever “aerobics” he could.

I want to have Jimmy’s attitude. We win when we do what we can, as well as we can, for as long as we can. Yes, your doctor needs to be involved and advising you on exercise and stress, and you need to listen. When I told my mom I went for a twenty-five mile bike ride several weeks ago I thought she was going to walk right out the door and drive the 13 hours to my house. She was sure I was crazy and would get hurt.

As it turned out, my knee hurt for weeks, so she was right (of course). Remember cancer may reduce your strength and stamina, so don’t get crazy. Being physical when you have cancer, MS or anything is very important. I am moving again doing yoga, swimming and using the elliptical machines to compensate for the knee. Some day soon, I may even understand “moderation” as a concept.

Cancer or illness may hurt your sex life. Don’t let it if at all possible. Sex is a great physical activity. You burn calories, get closer to your partner, put your internal voice on hold for a few minutes and work up a sweat in what has to be the best way possible. Would you rather run, swim, do yoga or have sex? Couldn’t resist putting a poll here to check in, so please vote for your favorite exercise.

Humor
I think cancer patients may have the best sense of humor. Every time I go to my oncology appointments I see patients laughing, hugging and joking. It’s a party even at seven in the morning. This is the exact opposite of what I thought the Oncology Ward would be like. Regular visits taught me to lighten up and laugh. Who would have expected that?

Uncertainty
Cancer is the biggest yo-yo ever. One day, week or month you might be walking the dog in the down stroke. The next day, week or month you might be back to living large and grooving on the upstroke. Yes, I just used the word “grooving”. I just saw the movie SuperBad. It is hilarious and grooving so I had to use “grooving” in a sentence. If laughter is the best medicine SuperBad is full of great medicine.

How do you care for, love and interact with someone who is living on the biggest yo-yo ever? Very carefully and patiently is what my support system tells me.

Searching for Comfort
Pain can stop you from doing things you really enjoy and need to do such as exercise and having a sex life. I am thinking of that old bad joke. The patient tells the doctor that it hurts when he bends his knee so the doctor says stop bending your knee. That is really bad advice when it comes to sex. Sex is way too important to stop.

Instead of not having sex you may need to make sex more comfortable. Liberator Shapes, a new kind of bedroom accessory, are made of dense foam that comfortably supports just about any sex position. Sex swings, straps and other sex position aids can help make sex comfortable maybe even gymnastic. See if you can use these or other tools to make sex comfortable if not gymnastic.

Benefits of Vibration
I discovered the benefits of vibration before the cancer diagnosis. MS deadens your nerves so a lot of things don’t work as well as they used to. Vibration applied to just the right places can bring nerves back to life and it feels great. We are in the middle of a vibration and vibrator boom. It is clear you don’t have to have an illness to feel the benefits of vibration on your sex life. When something feels great it reinforces itself. Vibration, vibrators and sex toys makes sex feel great. When your product makes sex better you are living in the sweet spot of innovation. See if you don’t find your own benefits of vibration.

Fantasy
If fantasy is important to a healthy sex life then fantasy is massively important if you have cancer (or MS or diabetes or any health challenge). Fantasy can help you feel more capable and confident. Fantasy is fun, but it can be a little intimidating too. Doctors are taught by the “watch one, do one, teach one” method. They watch a procedure, they do a procedure and then they teach that procedure to others.

We are sex educators. We understand watch, do, and teach and use it in our sex education productions. We know it is not hard to find a place to watch people having sex these days, but you may not want to attempt everything you see. Let’s do this. You watch one, do one and then share what you learn. Some fantasies work, some don’t. Time is too valuable to waste on fantasies that are never going to work.

New Sex Positions
Once Yoga helps me touch my toes I can see that new flexibility is going to be amazing for discovering new sex positions. Yes, there is more than one sex position. If you are dealing with health issues a new sex position may be a must. There are tons of tools, books, videos and good web sites (including ours) that can help you discover new sex positions. Experiment, find what works and then experiment some more using whatever tools are helpful.

ED
Everyone knows about erectile dysfunction thanks to drug company ads. My favorite is the guy cheerfully walking around the office as co-workers try to figure out why he is so happy. The guy must have been a major jerk because he just doesn’t seem that elated in the ad, but everyone is asking him if he got a promotion, won the lottery, bought a new car or what. No, he’s back in the game sexually is what the ad implies. Boy can those ads imply! I also love the infamous “4 hour erection” problem. That is a negative; the condition can be very painful, that the ads try to make sound like a positive.

Here’s the thing. All kinds of things can cause your plumbing to malfunction. Medication is a big one and smoking is another. What solution do most doctors suggest when you complain about the ED side effect from the medication that is lowering your blood pressure, cholesterol or preventing stroke? They give you a script for a yet another pill. I don’t know about you, but there are only so many pills I want to take and I am past that limit already. There are pumps, straps and rings that can help with erectile dysfunction. Think of them as the “all-natural” alternatives and let me know if you would like a more in depth article on ED.

Marty’s Ipod
My iPod saves me. When I go to the doctor I start with Miles Davis (Milestones, Birth of the Cool or Relaxin'). When I get moved to the interior room, you know the place where you are eventually going to see a doctor but it could be another hour, I listen to Keith Jarrett, Chic Corea, McCoy Tyner or Glen Gould. Pianos help me relax as I wait for the long white coats and my test results. After my appointment I turn up the volume on the Stones, Led Zeppelin, The Who or Hendrix. After the appointment, I want loud music of the classic variety. Sometimes I get a little more hip, or as hip as I get, and listen to Beck, Smashing Pumpkins and Red Hot Chile Peppers.

Share
What’s on your iPod and how do you use it to cope? I am open to anything, so send your favorite tunes, shows, audio books and whatever so I can try your ideas on my next trip to the doctor.

Marty’s Dreams
You don’t stop dreaming just because you have cancer. My dreams…

Painting a great painting (think Vermeer meets Rauschenberg)
Traveling to Bhutan, Africa, Europe and Italy
Writing a great book
Getting married again
Riding my bike across the United States
Raising money to support the Duke Cancer study I am part of
Owning and riding a great bike (Orbea, Serotta or Lemond other suggestions?)
Going for a bike ride with Lance Armstrong
Going for a long bike ride with my sister when she doesn’t drop me (she will have to be in a good mood or very, very tired for me to have half a chance at this)
Creating a new web site to continue sex and cancer ideas and dialog (need your help with this dream, so please email)

Your Dreams
What 10 things do you want to accomplish?

Thank You
Thanks for walking with me as I rambled around today. People create hope anytime they share anything. It is really that easy. If we receive tons of emails and ideas we will write a second edition of this story (or maybe even a book). Your feedback is important, in case I haven’t drummed that idea way too much (and if I have sorry about that), so please send some hope our way by emailing Marty@bettersex.com

Marty

Marty in his studio.

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